I got out this morning and walked a mile.
Not that it’s going to make much of a difference because I finally heard from the Transplant Team and I do not qualify for a transplant. My lungs are too badly deteriorated to the point that they don’t think I can survive the surgery.
The next step I was hoping for, a Left Ventricle Assistance Device, (LVAD) is also off the table for the same reason.
So, the next step is to talk to Stanford University and the more aggressive program they have there. Because of the travel involved, I’m not terribly excited to get involved down there.
The one question I didn’t ask is what is my life expectancy. I would like to know what the doctor thinks is ahead for me. Do I have a year? Two? Clearly I’m going to get weaker as this goes on.
Right now I can pretty much get out there and enjoy life. I’ve been able to ski, I can still get around okay. The only bummer is I can’t swim.
The numbers from yesterday’s Right Heart Cath indicate I’m declining. The drug that is presently attached to me and pumping into my heart, Milrinone, is probably helping me but not improving me.
So, today I walked one mile in 25 minutes with a two minute rest a little beyond half way.
I am maintaining a positive outlook and fully expect to complete the 30 day Walking Challenge.